finding a cause and cure for melorheostosis

2011 Melofund Golf Tournament and Dinner/Auction

1st Annual Melofund Pub Crawl

Thank you to everyone who participated and supported our events! They were a huge success!



Most people sit across from their doctors to look for answers, we sit next to ours.

"Melo," as it is commonly called, is a rare and progressive disorder characterized by the thickening of bones. It affects both bone and soft tissue, and while benign, can result in severe functional limitation, extensive pain, and significant deformity. Melo is a "one in a million" disease–fewer than 300 cases have been diagnosed in the world.

Melorheostosis' rarity, combined with minimal support and funding, means very little medical research has been performed. Melo has no cure, no known cause, and no effective treatments.

The only way our mission can be achieved is with YOUR help. Finding treatment, a cure, and a cause starts with funding for research.

Please join us in this cause. Together we can give hope to all people affected by melorheostosis. Thank you!


 
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