Pain

It is Thursday night, October 2nd at 7:20pm and I am compelled to write my first blog on my web site (long overdue I know), because today I find myself in an extraordinary amount of pain. I dont know if it is more frustrating that there is no obvious reason for the pain or that there is nothing I can do about it. Those who know me well, know that I very rarely express to anyone that I am hurting. But today, figuring in some way it might help, I told lots of people. I suppose it did help, and everyone that cares about me is so wonderful and sympathetic, but there is no way I can make them understand how it feels. I guess in some way I feel like if I can describe my pain so that they can relate it to something they have felt before, that they would really understand and that might justify me feeling so badly. Everyone feels pain in their life at all different levels. I guess what is so difficult about pain associated with a rare bone disease like mine, with no established cause, cure, or treatment, is that there is a feeling of ...