Most people sit across from their doctors to look for answers, we sit next to ours.

Its Sunday morning November 9th at 8:37am. I have posted some pictures from my wonderful trip to Washington DC a couple of weeks ago for our annual Melo conference. On the left is the White House, in the middle is me standing in front of the Washington National Monument, and on the right are some of my Melo friends. Jen Gordy from Colorado is on the right, her husband is on the left, and Sajjad from Bangladesh is in the middle. Sajjad is one of many people who came a long way in hopes of finding some answers about his rare disease. What he found out is what I already knew, there are no answers. What he did find were doctors that knew how to pronounce the disease and who would love to someday have some answers for us. What he also found for the first time were fellow patients like me. There is something so powerful about finally looking another patient in the eye because without even speaking, you understand each others daily struggle. I go back ...