Its about time!

Its about time I posted a new blog because it has been way too long! I avoided posting for a long time because anytime I focus on my disease, the pain gets worse! I love going to the conferences each year but my pain is always so much worse around that time so i tend to disappear for a while after its over! There is no help for the pain we deal with and there are no doctors to visit that can give us any help or even understand what our disease is. But recently I have come to realize how powerful the brain can be and that I may actually be able to have some control over my pain! This is a very exciting revelation for me because in addition to the chronic pain melo patients deal with, we also have to battle the daunting fact that there is nothing we can do about it as it progressively worsens. When I allow myself to get caught up in these thoughts, (which doesnt happen very often but occassionally I cant help it!) I get overwhelmed with depression, emotional fatigue...and pain. So over the past few years I began noticing that when I thought about ...